celebrities with bicuspid aortic valvesigns my husband likes my sister

Ive a BAV with the fusion being between my right coronary and non-coronary leaflets. Hey has been physically active with restrictions of no contact sports, and no isometric exercise. However, some people are born with an aortic valve with only two leaflets, known as a bicuspid aortic valve. OPTIMUM HEALTH, INC Im doing cardio as they said thats fine and I was lifting free weights tonight of 10kg. He just turned 15 he is 511 203 lbs and has a heart of gold. He wasnt real worried about me and I have regurgitation (mild) and (mild) aortic root dilation.. Do u think it would be OK to lift weights and if so maybe u could give me a better understanding. Im hoping you can help with some guidance. Aortic root is 4cm and currently waiting for a 6month check up to see how it`s going. The confusing thing I hear is some cardiologists telling BAV people not to life over x lbs. Hector V. Ive never heard about a mechanical aortic valve becoming loose because of high HR. Can you please shed some light on this is the sport performance supposed to gradually diminish (seems to go to zero for me) before the operation is needed? It will also be necessary to keep a close eye on the size of the aorta over time, using echocardiography and CT. 2. I was also advised that it is really the static weight-lifting that could pose a problem. This is true at rest and may be even more so during exercise. Yoga is not included in the classification of sports that is commonly used, but I suspect that yoga would have low to moderate static and dynamic components. At the USC Cardiovascular Thoracic Institute, we are dedicated to improving the statistics concerning cardiovascular and thoracic disease such as those once faced by the governor, said Starnes, who also serves as executive director of the Institute. No one loves life more than I do, read the statement. This makes the aortic valve a tricuspid valve. Its probably not possible to have too much information as you think about your situation. Search Hospitals, Join 375,000+ Patientsat Our Facebook Page Click here, HeartValveSurgery.com 2785 Pacific Coast Hwy, #517 Torrance, CA 90505 Phone: (888) 725-4311, 2023 HeartValveSurgery.com. A bicuspid aortic valve is a congenital heart defect that affects the one-way valve between your heart and your aorta, known as the aortic valve. Perhaps you could organize such a visit for a 2nd opinion regarding safe levels of exercise? Im 33 and I do jiu-jitsu. These Famous People Survived Congenital Heart IssuesYou Can, Too, On-Site CLIA Certified Laboratory Services, Click here for COVID-19 & Vaccine Information, Actor, body builder and former California Governor, After winning three Super Bowls with the New England Patriots, linebacker. But, while doing my cardio stress test they discovered that I have a Bicuspid Aortic Valve. Thoughts. I see my cardiologist the end of May. For example, are there data that shows what happens to aortic diameters once sports have been stopped? Your web site and the links have much good information. On the bright side, there is ample evidence that, in the modern era, life-expectancy is not shortened for individuals with BAV compared to the general population. Baton Rouge, Louisiana 70808. Without careful study, I dont know what the true risks will be. I am 18 years old . My resting pulse is 55 and BP 115/82. , Bicuspid Aortic Valve Disease, Acquired Valve Disease. Currently complete in 5-a-side football and have done for life. If I ever need surgery to replace my root , I understand that there is an element of complexity for such surgery, but after surgery, is life expectancy for individuals assumed to be shortened at all ? Alternatively, bicuspid aortic valve symptoms can appear during the first twenty years of life. She says now it is stable and I dont have to see her for 2 years. On April 16, 1997, Arnold Schwarzenegger underwent elective heart surgery to replace a defective, congenital aortic heart valve. If you havent yet seen a surgeon, perhaps a visit would all wan opportunity to talk about these issues, even if operation is not yet needed. Ascending aorta is normal and so the rest. Just still unsure however if my bioprosthetic valve affects my cross country running times. Advertisement. Aortic stenosis and bicuspid aortic valve (BAV) My problem is a perpetual fear and worry about having this diagnosis and having to someday undergo open heart surgery. An abnormal aortic valve develops during the early weeks of pregnancy, when the baby's heart is developing. For example, his spurt in enlargement happens to coincide with his spurt in growth. From your reading, or even just here at the blog, youll know that its not an unusual story. The GOPs failure to get the 118th Congress going shows how the performative nature of todays Trumpified party is making it incapable of governing. Thanking you in advance, Thanks in advance. I have found in my case( an athlete with bav)the typical response from doctors is, thats life, you cant do it anymore, be grateful for what you have. I have moderate to severe regurgitation and the heart is enlarged as far as I understood. The procedure has the potential to bring the aorta to 4.3/4.4 and avoid further enlargement. In your experience, can patients with BAV go a lifetime without having AVR? I would really like for people to not have to experience what I had to experience, she continued. Thats important to keep in mind. I would think that moderate would be a good term for 8-12 rep range, pullups (unassisted), and pushups. His doctor recommended he see a pediatric cardiologist within 1-2 weeks but when I called they cant get him in until April 14th. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. If a large enough valve is implanted, there may be no noticeable impact on the ability of the heart to do extra work that comes with running (or any exercise). Ive seen several cardiologist and they are divided in recommendations. I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. Dietz?) My son was just told he made the varsity basketball team as a freshman. A few hours after helping the woman, she began to experience chest aches, soreness in both arms, nausea and clammy skin. Yes, as the patient grows, so will the aorta.and eventually you get to the traditional >40 mm cutoff where activity restrictions are advised. Should I stop jiu-jitsu as it is a mix of anaerobic exercise (which I hear is bad) and aerobic exercise (which I hear is good)? My son was also complaining of shortness of breath with stairs mild and feels tired more easily. looking forward for healthy life without surgery any possibilities??? I would not want yo distinguish between the various forms of static exercise that you mention. Dr Creswell, In January 2021, she underwent open heart surgery to install an aortic valve. Have you heard about the PEARS procedure? Whether 130 beats per minute is a good cut-off truly isnt known. All rights reserved. Prescriptions for safe exercise will need to be carefully tailored to your particulars. I certainly know of athletes who return to all forms of endurance sport as well as weight-lifting after operations like yours. I have had three annual Echocardigrams, the first two showed mild stenosis, mild LV thickening. I was only diagnosed with BAV after a routine examination and only because my company has increased in size above a threshold at which all employees are supposed to be subjected to this examination (weird law in Belgium). Over the past 3 years, my endurance has declined significantly, and now I cannot run a lap on the treadmill without some walking; however, my numbers from the semi-annual utrasound have not changed much. 24 HOUR GYM Yes, there are many athlete patients whove had operation for BAV/aortic replacement and returned to a variety of sports. At this appointment she advised that there has been some progression in his regurgitation and she did a stress test on him which did not show any concerns and hey was a ble to do it for almost 12 minutes. It would be great to know what happens to groups of patients after AVR and aortic replacement that have returned to their various sports. Would this constitute as too much in your opinion ? Then, Arnold's pulmonary valve was switched to the aortic position. I do not do any kind of sport and I want to have healthy life at make sure my situation not getting worse and I weight 90 kg. Thats always the concern with new techniques with limited follow-up data. Moreover, there is a myriad of operations that such patients may have had, each with its on set of considerations. I see Im not alone. In 1997, Dr. Starnes led a team of three surgeons who replaced the aortic valve in then-actor Arnold Schwarzeneggers heart. Thats an issue to pursue with your sons doctor(s). Be specific. Best to continue to work towards identifying cause(s) and getting any needed treatment. Im really wondering at what point should I look into flying back to Thailand or Hong Kong to get re-checked. His last MRI showed a dilation of 4.4cm at his aorta root but his BAV is fine with very little leakage. We saw cardio in April again and my sons symptoms are the same and no progression on the aortic regurgitation. It doesnt help that I am a nurse. In short, is it too early for me to start talking to a surgeon to identify available options? I am mostly a runner, 4 times a week, with 10 21 km races. Anyway, his aorta was growing at a rate of 2 mm per year (he was growing faster:).and they put him on 100 mg Losartan. Aortic valve regurgitation: Blood leaks back into your left ventricle instead of only flowing into your aorta. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. I inderstand that my resistance training will likely be severely curtailed from this point forward, but severe restrictions on my endurance training will be a very difficult pill to swallow. Yesterday, for example, I spoke with a 71-year old patient who just had aortic valve replacement surgery due to this . I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). Bicuspid aortic valve (having only two leaflets rather than the normal three) happens in about 1% to 2% of the population and is more common among men. What should i do? This is the way I can help. Sbp. Our only tool to keep track of aortic enlargement is repeated measurements with CT or echo. Theres no reason to not be CPR certified.. The first pic showed the action and comedy legend in a supine position with a thumbs-up, while the next three featured a lovely autumn walk, taking in the sights. She's currently spreading the word about the AHA's partnership with CVS' MinuteClinics for free heart health screenings every Thursday in February. So it's got the Rock and Roll Hall of fame and great doctors. Sounds like youre on the right track by getting things evaluated. There are several variations of this procedure that are applicable in specific situations. And, of course, its important to monitor over time the function of the prosthetic aortic valve and the size of the aorta. ", Braxton is a survivor of pericarditis, an inflammation of the sac surrounding the heart. Next year I would like to finish my first marathon but now I dont know whether I should keep running. I am young with many years ahead, I dont want to accept this just yet when I know theyre is possibilty of repair. Hi all, I have question about your opinion about aortic valve regurgitation (no BAV) There is a risk of sudden death in individuals with BAV, probably related most to aortic stenosis or aortic dissection/rupture. It is quite frustrating, Im running with some guys that have a hard time believing that I run a marathon. Early after operation, and for perhaps the first month, we typically limit activities that place stress on the shoulders and sternum. Thank you for your time Dr.! There are 2 broad categories of heart valve substitutes that can be used to replace the human aortic valve: mechanical valves or bioprosthetic (tissue) valves. I understand its strenuous activity but if Im for example bench pressing it will get harder for me to put it up at the 8th rep.. ( I was much worse though). The ST junction and ascending aorta are mildly dilated max 35mm. Heart disease and stroke are the number one killers of women, Streisand, 74, told PEOPLE about why she helped found the organization. Easy bicycling might work, but I suspect that running wont be workable with that cap. I am an having trouble seeing the difference in the ross procedure and the bioprospthetic valve replacement as far as benefits go? It functions as a one-way valve, opening and closing with each heartbeat, which keeps the blood flowing in the correct direction. Adam Pick is a heart valve patient and author of The Patient's Guide To Heart Valve Surgery. Ive yet to feel like Im back to my previous racing fitness that I once had. The worse the narrowing, the greater will be the difference in blood pressure between the arms and the legs. I cant lift over 40lbs and I cant continue my work as a tradesman as it requires lifting over the 40lb mark. Details of my condition: Down side: must take blood thinners to prevent blood clots from forming on mechanical valve. I have 4 children and a great wife. Very likely an operation will be needed at some point in the future. Defects can involve the walls or valves of the heart, or they may affect the arteries and veins near the heart. It usually consists of three flaps of tissue what are called valve cusps. They dont know they have it [It] leaks blood. Is this a normal side effect of the heart condition or not? EKG and echocardiogram were done showing BAVD. The exact cause of aortic enlargement in patients is not known. Aortic Stenosis Negative Stress Echocardiography Now at 74, and after having AVR I am 10 weeks into the dont lift more than 10 pounds restriction. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. Hes a 30-year-old 8th grade science teacher, a cyclist and outdoorsman, who is chronicling his story with BAVfrom diagnosis, to evaluation, to preparations for upcoming valve replacement surgery. Thank you so much! I dont know what to do .. That is except for the last two months hes had several illnesses ( influenza, bronchitis, URI). Benefits: no blood thinning (with attendant risks) needed. It is very difficult to find information regarding the athlete and BAV. Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. We dont have a crystal ball, though. He told me to carry on as normal and to take 300mg Irbesartan per day. At issue are the potential long-term effects of repeated episodes of high heart rate and high blood pressure that accompany intense exercise. While I no longer due very strenuous activities, I still play softball, golf, kayak, ski, and do play hockey every now and again. A bicuspid aortic valve is a congenital condition, meaning that people are born with two rather than the normal three cusps on their aortic valve. I was to the understanding that the aneurysms caused in bav patients was due to the problematic bav valve causing uneven blood flow to cause uneven pressure on the aorta. Apparently I also have a mildly enlarged IVC as well as mildly enlarged left and right atria. John Fox, NFL coach, suffered from Aortic Valve Disease. I have been given no restriction to date in any physical exercise as my valve is in decent condition. My last CT scan in November showed a change from 4.3 (May) to 4.5 (November) however I was only given these results yesterday. Im a 57 year old male who had aorta repair and porcine valve surgery 3 years ago. Thanks for the very insightful post, and for taking the time to reply to everyone here. I was born with a BAV and but I didnt notice performance issues until the Summer of 2016, so I brought myself to the doctor. ANYTHING other than walking and golf? I dont know about the relative effectiveness of various ARBs used for this purpose. Exercise and sports are usually safe if there is mild aortic root enlargement but no other heart or vascular problems. September 13, 2017 1:00 PM. Yes, I am aware of the work by Dr. Dietz. diagnosed wid BAV AND AS WITH AR My son will seek a repair when his conditions deteriorate. In the 2.5 years from surgery, I returned back to riding within the first 3 months and later back to longer, decent training pace rides and racing but feel like I have lost my top end mojo. A repaired valve may not be as efficient as the native, healthy valve. Enlarged lv 37/58 mm rf 65 fs 36 This has been true as long as I can remember in all sports I seem to have to put a lot more in to get the same out as others. Went through the process of antibiotic therapy and. Coarctation of the aorta is a narrowing that may produce an increase in the blood pressure in the upper extremities. Notify me of follow-up comments by email. If labeling my fitness level I wouldnt use the term athlete, but I used to work out pretty vigorously 5 days a week until about 8 months ago (weights, medium endurance cardio, no longer distance running than 5 miles, interspersed with HIIT). Celebrities With Heart Disease - Celebrity Heart Health Survivors. My cardiologist has told me that, based on how my heart sounds, he doesnt think hell ever have to operate on me. Arrhythmias may sometimes manifest many years after surgical repair of congenital heart defects. "I had many of them, but I thought, 'Nah.' Tachcardaia beetwen echo due that doctor couldent see clearly. The video is just 1 min 42 sec long. Perhaps a cardiac surgeon would be able to provide even more detailed information about things like various options for operation that might be applicable in your case as well as thoughts about when operation should be performed. In general, the larger (in diameter) the substitute valve is, the less aortic stenosis it will produce. Thank you for this blog! I met an old guy once after a run and he described me very well his running experience; he said when I accelerate, Im the only one to know. I wouldnt be happy just running I want to be the best that I can be at it. Jeffrey Howell didn't know he was born with a bicuspid aortic valve until December 2015. Have completed an excercise stress test and signed off as ok on reaching level 13. I have a call in to his doctor but what do you think? Semilunar valves: The pulmonary valve and aortic valve. So unfortunately it sounds like i am part of that grey area. I believe that many Cardiologist are not as experienced regarding how to advise high-performing athletes (even older ones like us). I mean, when competing, my average heart rate is close to 159 and my max HR is around 170. The congenital bicuspid aortic valve (BAV) condition is a valvulo-aortopathy with substantial heterogeneity in its clinical expressions, associated disorders, complications, and prognosis. Bicuspid aortic valve (BAV) is the most common form of congenital aortic valve disease, in which the valve has only two leaflets instead of the usual three; it affects up to 2% of the population. Im not surprised that youve received a conservative recommendation about exercise. John Ritter - Actor - passed away due to undiagnosed CHD at age 55. "Were saying to put the focus back on you and make a date with your heart.". 2. Schwarzenegger was born with a condition known as bicuspid aortic valve, in which the heart's main artery, the aorta, has only two cusps instead of three. I have severe aortic stenosis with no signs or symptoms. Youll need to rely on your doctors for advice about your condition. (I am on a low dose beta blocker) Sadly, no crystal ball is available. In April of this year (2016), I discovered I had a BAV in the worst manner possible. Dear Dr. Creswell, which seems to suggest that he has returned successfully to the sport. Would this have any affect on any of the results of the tests I have done (Echo, EKG, Chest Xray)?

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